Chailey Clinical Services (CCS) supports and enables children and young people with complex neurodisability in a safe, nurturing environment; promoting good health and optimising function and quality of life. Our focus is for children and young adults to be secure and comfortable, and to promote independence, enabling them to be active in their wider community.
The Chailey Charter is the foundation of our mission to ensure every child or young person in our care has the right to be treated as an individual, to be listened to and heard, to be safe, to be as fit and healthy as possible, to be encouraged to feel good about themselves, and to be encouraged to develop to their full potential.
We provide clinical support to children and young people in their home or place of residence, in mainstream and special schools, in our specialist outpatients’ clinics, and in our Short Breaks services.
Chailey Clinical Services delivers needs-led, bespoke therapeutic and medical care for children and young people with diverse and often fluctuating conditions related to their complex disability. Our multi-disciplinary team (MDT) includes nurses, occupational therapists, paediatricians, physiotherapists, psychologists, rehabilitation engineers, speech and language therapists, healthcare assistants, clinical scientists, pharmacists, and a dietitian.
Through their expertise, our specialist teams assess children and young peoples’ core needs, formulating a care plan designed to enrich their lives and help them maximise their potential and their participation in society.
We offer six highly specialised, community-based services for children and young people across Sussex, south east England and the UK. These services are:
Watch this video for an insight into some of the work we do at Chailey Clinical Services (CCS).
The Rehabilitation Engineering Service (RES) at Chailey Clinical Services provide engineering solutions to enable children and young people with complex neurodisability undertake activities with increased independence and safety.
RES work as part of our multi-disciplinary team alongside therapists providing innovative assistive technology where commercially available equipment does not meet our service users' needs.
Our expert Rehabilitation Engineers design and manufacture custom-made medical devices and assistive equipment using specialist facilities at our on-site mechanical engineering workshop.
Our Chailey Communication Aid Service (CCAS) provide high-tech communication aids for spoken communication for children and adults with complex needs. We use Augmentative and Alternative Communication (AAC) methods which supplement speech.
Chailey Communication Aid Service is an NHS England-funded multi-disciplinary service covering Sussex and Surrey which has been running since 2015.
Both the Rehabilitation Engineering Service (RES) and the Chailey Communication Aid Service (CCAS) are led by a consultant clinical scientist and are registered with the Medicines and Healthcare Products Regulatory Agency (MHRA) for the manufacture of class 1 and custom-made medical devices.
The Chailey Rehabilitation and Transition Service (CRTS) provide post-acute assessment and intensive rehabilitation for children and young people with complex neurodisability. The on-site service has provision for inpatient stays as well as clinic rooms suitable for outpatient therapy.
CRTS offers timely, intensive care packages following life-changing events including inpatient neuro-rehabilitation, outpatient rehabilitation and acquired brain injury assessment clinics.
Our multi-disciplinary CRTS team includes medical, nursing, therapy, neuropsychology, physiotherapy, occupational therapy, speech and language therapy and dietetic professionals. The team work closely with children and young people and their families to enable effective rehabilitation and transition back into the community.
Chailey Clinical Services provides clinical support to Chailey Heritage Foundation (CHF) – a charity that provides education and care services for children and young people with complex neurodisabilities. The charity runs Chailey Heritage School, Chailey Heritage Residential, Chailey Heritage Futures, and Chailey Heritage Pathways.
At Chailey Clinical Services, we offer flexible specialist services for children and young people who attend Chailey Heritage School and the other services run by the Foundation, enabling them to live the life they choose. This includes holistic and emergency care for pupils, assessment and provision of specialised equipment, and training and support for staff. We also offer transition plans to assess the needs of young people aged eighteen and over who are moving from Chailey Heritage School and residences to Chailey Heritage Futures and Pathways.
Our 24-hour nursing team at Chailey Clinical Services is crucial to the provision of safe and effective care. The team is comprised of registered nurses with a range of specialist skills and knowledge in children's nursing, adult mental health and learning disability.
In addition to round the clock response to fluctuating health needs, the nursing team provide holistic assessment, bespoke clinical care plans, emergency and contingency plans, early intervention, referrals, activities risk management, medications management, and act as key workers for families. Skilled health care workers support the nursing team through the provision of delegated duties.
Our team of neurodisability consultants, associate specialists and clinical psychologists undertake a number of multi-disciplinary outpatient clinics. Doctors also provide medical oversight for the pupils and residents of Chailey Heritage Foundation in relation to their complex neurodisability; including clinical assessment and annual health reviews, seizure and pain management, movement and posture intervention, and support to manage clinical emergencies. The medical team also provide on-call advice to the nursing team out of hours.
Within the medical team, there is a highly specialist neuropsychology team, made up of a paediatric neuropsychologist, clinical psychologists, trainee psychologists and assistants on placement. They provide detailed assessments of cognition, mood and behaviour, in the context of acquired and congenital brain injuries. The team support both Chailey Heritage Foundation and our Chailey Rehabilitation and Transition Service, as well as running a regular dedicated neuropsychology outpatient clinic.
Our team of allied health professionals (AHPs) include occupational therapists, physiotherapists, speech and language therapists and a dietitian. These specialist professionals undertake work in multi-disciplinary outpatient clinics at Chailey Clinical Services. AHPs also provide therapeutic input to children and young people attending Chailey Heritage Foundation School and residential care. We work together with teaching staff, care staff and other health professionals to provide integrated child-centred care.
A summary of how these teams support our work:
Chailey Clinical Services provide a range of specialist outpatient clinics which are an essential element of the holistic support we offer.
The majority of the clinics are multi-disciplinary and consist of half-day or full-day sessions. Some can involve up to week-long intensive multi-disciplinary team support with daily living activities. Clinics are led by our own specialist teams of clinicians, in addition to those led by visiting consultants, podiatrists and an ophthalmologist. Our clinics include equipment, movement, surgical, therapeutic and rehabilitative provision, as well as X-ray and orthotic services on-site.
For further details see our clinic profiles:
At Chailey Clinical Services, we have been conducting research into paediatric neurodisability for over twenty years. Our research underpins our problem-solving, needs-led approach to supporting children and young people to reach their potential. We have a strong track record in leading and participating in clinical research nationwide and Europe-wide to define good healthcare for children with complex neurodisability.
We are leaders in the fields of posture management, powered mobility learning, eating, drinking and swallowing, motor skills, assistive technology, sleep, and consulting with children, young adults and their families.
Find out about research at Chailey Clinical Services, including ‘Breathe-Easy’. This study explores the experiences of children with complex neurodisability and their families with the use of postural management for respiratory positioning at night-time.
Building on our expertise and research excellence, we provide specialist training which has been developed from the clinical experience of the team and from research carried out by individuals and teams at Chailey Clinical Services.
We provide in-house training to CCS staff and teams across Sussex Community NHS Foundation Trust to expand knowledge and skills in working with children and young people with complex neurodisabilities.
Our team teach on undergraduate and postgraduate University courses, as well as provide active professional support for nurses, clinical scientists, medical students, and the Allied Health Professions (AHP).
In addition, our medical team provide training to parents to support them with their child’s complex disability.
Chailey Clinical Services staff work in partnership across multiple disciplines and between our diverse range of services. Our staff often work flexibly between services to share knowledge and skills, and to bolster resilience which helps deliver the best outcomes for the children and young people we support. We offer a comprehensive induction process and support all staff with their professional development training needs.
- Fabienne André, Physiotherapy Assistant at Chailey Clinical Services
We have a range of specialist outpatient clinics, which can be accessed via referral from an NHS clinician.
The following services are available to children and young adults, with appropriate referral and funding:
Referrals to the other services are either via an NHS clinician or the Health/Local Authority Lead Manager responsible for buying specialist services.
Email referrals to: firstname.lastname@example.org.
If you are an existing service user and you require repairs to wheelchairs or home equipment, find out more about repair services.
Chailey Clinical Services,
Beggars Wood Road,
North Chailey, (Near Lewes),
Tel. No. 01825 722112
Find out more about how to contact individual CCS teams directly.
Chailey Clinical Services opening hours are:
Monday to Thursday 8:45am to 5pm
Friday 8:45am to 4:30pm
Our multi-purpose buildings are situated in beautiful countryside in North Chailey at the foot of the South Downs. We are near Lewes and about 30 minutes’ drive from Brighton. The nearest railway station is Haywards Heath. There is free parking on site.
Get maps and directions for Chailey Clinical Services.