Useful links
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Quick links: Charities for specific conditions | Other Contacts | Environmental Control Services (Surrey & Sussex) | Other AAC Specialist Services |
Charities for specific conditions
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Ataxia UK |
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Ataxia UK provides information, advice and support to people affected by ataxia. They also support medical research into causes and potential therapies |
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Dystonia Society |
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Dystonia Society support for people with dystonia, and their families. They promote awareness, publish literature and are involved in medical research and welfare. |
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Headway – the brain injury association |
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Headway is the UK-wide charity that works to improve life after brain injury. Through its network of more than 125 groups and branches across the UK, it provides support, services and information to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields. |
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Huntington’s Disease Association |
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The Huntington’s Disease Association supports families affected by Huntington’s disease. They are a client organisation which provides care, advice, support and education to families and professionals caring for someone with the illness, the individual themselves, and those at risk of developing it. |
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Motor Neurone Disease Association |
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The Motor Neurone Disease Association supports people affected by motor neurone disease to ensure that they receive the highest standards of care in order to achieve quality of life. They provide a helpline, information, equipment loan, financial support, a network of regional care advisers, local branches and volunteer visitors and fund research into the causes of MND. |
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Multiple Sclerosis Society |
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The Multiple Sclerosis Society provides support and information for people affected by multiple sclerosis through a network of branches, a helpline and a range of publications. They are involved in research into multiple sclerosis and policy work and campaigns on MS issues. They also provides respite and holiday homes. |
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Multiple Sclerosis Trust |
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The Multiple Sclerosis Trust supports people with multiple sclerosis, their families and friends, and the health and social care professionals who work with them. They provide information about multiple sclerosis; education for nurses and other professionals; undertake research which is relevant to people who live with multiple sclerosis; and support multiple sclerosis specialist nurses |
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Multiple System Atrophy Trust |
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The Multiple System Atrophy Trust provides information and support to people living with multiple system atrophy and their families. They raise awareness of the condition and its treatment, especially among healthcare professionals; and are involved in medical research into causes of MSA, potential therapies and ultimately its cure. |
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Muscular Dystrophy UK |
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Muscular Dystrophy UK is the charity for individuals and families living with muscle-wasting conditions. |
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Parkinson’s UK |
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Parkinson’s UK provides support, information and advice to people with Parkinson’s and their carers and families. They also fund medical research into causes of Parkinson’s and potential therapies |
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Royal National Institute of the Blind (RNIB) |
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The RNIB supports people affected by sight loss. They provide care, advice, support and education to people affected by sight loss and campaign to make society a more inclusive place. |
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Scope |
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Scope exists to make this country a place where disabled people have the same opportunities as everyone else. With your support, we'll keep driving change across society until this country is great for everyone. |
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The Stroke Association |
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The Stroke Association is the UK’s leading charity dedicated to conquering stroke. We provide information, support and advice to help stroke survivors make the best recovery they can. |
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Other useful contacts
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The Advocate’s Gateway |
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Useful information, services and resources, especially in relation to the use of communication aids in the justice system. |
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Call Scotland |
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CALL Scotland is a Research and Development centre as well as a working Service unit. Both elements are necessary and important – they inform, enrich and support each other. CALL has a practical hands-on approach to working with individual pupils in schools. As a result, CALL research and development work is always firmly ‘grounded’ in the real needs of pupils, teachers and families. At the same time, the academic and specialist technological knowledge developed from research and development supports the centre’s service work. |
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Communication Matters |
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Communication Matters is a UK charity that promotes the best possible communication for people with complex communication needs. A series of 8 leaflets on AAC produced by Communication Matters can be found at http://www.communicationmatters.org.uk/page/focus-on-leaflets Communication Matters are also developing free online resource called AAC E-Learning which can be found on http://www.aacelearning.org.uk/. |
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Disability Matters |
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Disability Matters offers free resources to support those who work, volunteer or engage with disabled children and young people (from 0 to 25 years) and their families. It seeks to address the barriers that make society disabling. The resources have been developed by disabled young people, parents, carers and other experts. Disability Matters aims include raising the profile and awareness of disability and issues that affect everyday life and to help young people overcome the social barriers they face. They also aim to support people who work with disabled young people, including employers, to better support and respond to needs of disabled young people and their families. |
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ISAAC (International Society for Augmentative and Alternative Communication) |
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ISAAC works to improve the lives of children and adults who use AAC. Their vision is that AAC will be recognized, valued and used throughout the world. ISAAC’s mission is to promote the best possible communication for people with complex communication needs. ISAAC accomplishes this by sharing information and promoting innovative approaches to research, technology and literacy through AAC. Activities include hosting the ISAAC biennial conference, sponsoring projects, and offering awards and scholarships. |
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NHS England |
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NHS England is a commissioning board for health services across England. Its ambition is to place the clients and the public at the heart of everything we do in the NHS. |
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1Voice – Communicating Together |
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1voice is a charity that organises national and regional events for people who use communication aids, their families and professionals working with them. |
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SpeechBubble |
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SpeechBubble provides information on different low and high tech communication aids. |
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Understand Me - The Communication Library |
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West Sussex County Council Library Services - Understand Me - The Communication Library provide a range of free resources to anyone who needs help with communication. All you need is a library card. |
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Environmental Control Services for Surrey and Sussex (incl. Brighton & Hove)
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The Assistive Technology Service (Surrey and West Sussex) |
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The Assistive Technology Service provides electronic assistive technology to severely disabled people in Surrey and West Sussex. It is part of St George’s University Hospitals NHS Foundation Trust based at Queen Mary’s Hospital Roehampton London SW15. Contact |
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Environmental Control Services (East Sussex) |
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They provides electronic assistive technology to severely disabled people in the East Sussex and Brighton & Hove region. Contact |
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Other AAC Specialist Services (Hubs)
South of England
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Kent and Medway Communication and Assistive Technology Service (KM CAT) - Adults |
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Hub covering: Kent and Medway Contact |
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Kent and Medway Communication and Assistive Technology Service (KM CAT) - Children & Young People |
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Hub covering: Kent and Medway Contact: |
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ACE Centre (Oxford) |
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Hub covering: Wessex & Thames Valley, Adults and Children and young people Contact: |
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Bristol Communication Aid Service (BCAS) |
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Hub covering: South West, Adults and Children and Young People Contact: |
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London
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Compass Assistive and Rehabilitation Technology Service |
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Hub covering: West London, Adults Contact: |
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Wolfson Neuro-Disability Team - Communication Service |
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Hub covering: London, Children and Young People Contact: |
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Guy's and St Thomas' Assistive Communication Service (GSTT ACS) |
Adults: www.guysandstthomas.nhs.uk/ACS |
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Hub covering: London, North East and South East, Adults and Children and Young People Contact: |
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Assistive Communication Service (ACS) |
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Hub covering: London, Adults and Children and Young People Contact: Contact the service: |
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