What does this service provide?
Who we are
Our team consists of a consultant in neurodisability and a physiotherapist. We offer specialist advice and support to patients with Spina Bifida and Hydrocephalus.
What we do
We provide you with the opportunity to discuss any issues or concerns you may have on issues related to your condition with a medical consultant, and ensure you are receiving appropriate ongoing support from your local services.
Our team also provides specialist advice and support on postural management, seating, orthotics, and physiotherapy (if required).
Appointment information
Appointment types
Your appointment will take place in our outpatient clinic rooms at Chailey Clinical Services. When you arrive, our receptionist will check we have your correct details and show you where to wait for your appointment.
Each appointment is 30 minutes long. You'll meet with the consultant who specialises in your disability, and they will discuss your medical needs. You may be required to have a physical examination. Our physiotherapist can advise you on mobility, including wheelchairs, footwear, and orthotics, if required.
After your appointment, any referrals will be made to your any local adult services of benefit for any ongoing care. A letter will be sent to both you and your GP.
Who you'll see at your appointment
Our team consists of a consultant in neurodisability and a physiotherapist.
How can I access this service?
Referrals can be made by your GP, or other healthcare professional. Our service is available to adults over the age of 16.
We accept referrals from any area but if your GP is located outside of Sussex we will require funding to be obtained before acceptance.
Where can I access this service?
Let's get social
You can also get involved by engaging with our service's social media accounts by helping with the latest fundraisers and events.
Get the best from your NHS
If you need advice about our services, facilities or staff, or would like to make a comment, please contact Patient Advice and Liaison Services (PALS).
Contact details
You can contact PALS by the following:
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Tell us what you think about our services, what we are good at, where we can improve, and what matters to you? All feedback will be shared anonymously wherever possible, but if you have any questions about this, please ask.