What does this service provide?

Who we are 

We are a team of Motor Neurone Disease (MND) specialist nurses and practitioners providing support to patients diagnosed with MND and their families. 

What we do 

 We aim to improve the quality of life for people diagnosed with MND and their families. We do this through providing support and advice in people’s homes and providing a continuous point of contact.  

 Our services include: 

  • regular monitoring, assessment and intervention 
  • working with and listening to the needs of patients with MND and their carers 
  • symptom management 
  • working with and referring to other health professionals to provide a multi-disciplinary approach to care 
  • advance care planning to help patients with MND and their carers talk through options and preferences for their future care 

Appointment information

Appointment types 

We offer home visits, clinic appointments and telephone reviews.  

Who you'll see 

During your appointment you will typically meet one-to-one with one of our MND specialist nurses or practitioners from your local team. 

How can I access this service?

We operate an open referral system for patients who live in Brighton and Hove and West Sussex and are registered with a GP. We will need confirmation of your diagnosis from your GP or consultant before your first assessment.   

Where can I access this service?

Waiting times 

We aim to assess all our referrals within four weeks. 

Contact details

Each local team works varying patterns and hours and we are often out of the office in clinic or on home visits so may not be able to answer your call straight away. Please leave a message on our answerphone and we will get back to you as soon as possible.

Brighton and Hove MND Specialist Nurse
Contact details
Telephone: 01273 265 984 / 01273 696 011 ext. 4095
Opening hours

Tuesdays, Thursdays and Fridays from 9:00am to 5:00pm.

Where to find us
Address: Brighton General Hospital, Briggs Unit, Room BU25, Elm Grove, Brighton, East Sussex, BN2 3EW

You can find us using the what3words address snippet below on the what3words website:

pills.angle.pushy
Go to what3words

Alternatively, use the Google map below to get directions and plan your journey:

Open Google Maps directions
Coastal MND Specialist Nurse
Contact details
Telephone: 01273 242 289 
Opening hours

Tuesday to Thursday from 8:00am to 4:00pm.

Where to find us
Address: 3rd Floor, Southfield House, 11 Liverpool Gardens, Worthing, BN11 1RY

You can find us using the what3words address snippet below on the what3words website:

trash.poetic.boost
Go to what3words

Alternatively, use the Google map below to get directions and plan your journey:

Open Google Maps directions
West MND Specialist Practitioner
Contact details
Telephone: 01273 265 969
Opening hours

Mondays, Tuesdays and Thursdays from 9:00am to 5:00pm.

Where to find us
Address: Bicentennial Building, Southern Gate, Chichester, PO19 8EZ

You can find us using the what3words address snippet below on the what3words website:

blank.island.animal
Go to what3words

Alternatively, use the Google map below to get directions and plan your journey:

Open Google Maps directions
North MND Specialist Practitioner
Contact details
Telephone: 01403 620 444
Opening hours

Monday to Thursday from 8:00am to 4:00pm.

Where to find us
Address: Rose Wing, Horsham Hospital, Hurst Road, Horsham, RH12 2DR

You can find us using the what3words address snippet below on the what3words website:

figure.broad.slot
Go to what3words

Alternatively, use the Google map below to get directions and plan your journey:

Open Google Maps directions

Where can I find resources for this service?

MND Association – website providing support and advice from the charity MND Association.

Get the best from your NHS

If you need advice about our services, facilities or staff, or would like to make a comment, please contact Patient Advice and Liaison Services (PALS).

Contact details

You can contact PALS by the following:

Telephone: 01273 242 292

Give feedback

Tell us what you think about our services, what we are good at, where we can improve, and what matters to you? All feedback will be shared anonymously wherever possible, but if you have any questions about this, please ask.

Submit feedback