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Children and Young People’s Continence Team

The Children and Young People’s Continence Team (CYPCT) West Sussex and Brighton & Hove are a community based, nurse led, specialist paediatric continence service (Tier 2). The team is comprised of Registered Nurses and Associate Practitioners with specialist knowledge of children/young people’s continence, covering constipation, soiling, day wetting and night wetting (enuresis). Toilet skills for children and young people with additional needs in West Sussex are supported and it is aimed this service will become available in Brighton and Hove in the future.  

Healthy Bladder and Bowels (Tier 1)

This is the first level of continence intervention for children and young people. This can be delivered by various healthcare professionals including GPs, or provided by the Healthy Child Programme (HCP) - Health Visitors and School Nurses 0-19 service. Early intervention information and advice to help promote healthy bladders and bowels; this work reduces the risk of longer term problems such as ongoing constipation and wetting. Tier 1 interventions might include accessing and implementing:

  • Toileting advice
  • Fluid/ diet advice
  • Advice for day wetting
  • Advice for night wetting
  • Advice on recognising and managing constipation
  • Signposting to online resources
  • Signposting for additional support interventions

The child/young person should be reviewed at least once, to ensure that Tier 1 treatment and lifestyle changes have had time to be embedded, over the previous months. If the continence issues remain with no improvement made; a referral can then be made to CYPCT.

Healthy Child Programme (HCP) - Health Visitors and School Nurses (0-19 Service) (sussexcommunity.nhs.uk)

Useful information links:

Targeted Education Pathways (Tier 2)

The Children and Young People’s Continence Team (CYPCT) West Sussex and Brighton & Hove is the second level of intervention for Children and Young People with ongoing continence issues and/or bladder and bowel dysfunction and is a specialist, clinic based, nurse –led service.

We are skilled in the specialist assessment and management of children and young people with bladder and bowel issues and offer targeted education pathways, with a combination of both face to face and telephone appointments, that provide education about healthy bladder and bowels so that children/young people and their families become expert in managing their condition. We support children/young people and their families to implement the necessary interventions they need when working towards improving or achieving continence. We work closely with a wide variety of health, education and social care professionals.

At the initial appointment a comprehensive bladder and bowel assessment will be undertaken by an appropriately trained healthcare professional. This will inform the creation of an individual care plan and treatment recommendations to meet their needs. This may include the recommendation of medication which is then usually prescribed by the young person’s GP. If indicated for daytime and night time wetting an ultrasound bladder scan will be undertaken to establish if the bladder is emptying fully.

As this is a nurse-led service and when further specialist intervention is required, the service will refer to an appropriate hospital with children and young people’s doctors who specialise in bladder and bowel dysfunction.

  • Service Location:
    • Brighton
    • Hove
    • West Sussex
  • How To Access:

    We accept referrals from health care professionals for children and young people who have a registered GP in West Sussex or Brighton & Hove.

    The referral will need to detail what interventions and supports have been implemented at Tier 1 and the outcome of these.

    Age criteria for children and young people:

    3 years and over: Constipation/Soiling
    4 years and over: Day Wetting
    5 years and over: Night Wetting
    3 years and over: with an identified physical or learning disability for assessment to identify potential for active toileting skills intervention  (West Sussex Only at present time – July 2023)

    Only after nurse specialist assessment and further review by our associate practitioners regarding toilet skills potential; if a clinical need is identified, a contribution towards product provision can be provided from the age of 5 years, with the requirement of an annual review.

    Once a referral is received it will be triaged by a CYP Continence Nurse and allocated to the appropriate Tier 2 continence pathway of care. If we are unable to identify appropriate Tier 1 interventions the referral will redirected to the Tier 1 pathway supported by the Healthy Child Programme.

    Once a referral is allocated to a Tier 2 pathway relevant pre-assessment bladder and bowel diaries will be sent to the family, via a link to our continence app, to be completed in preparation for initial assessment. Parents/carers are required to register with the young person’s name, date of birth and NHS number and complete these diaries/charts and return them to the service within four weeks from receipt, failure to do so will result in discharge. A text reminder is routinely sent.

    Only after the diaries have been completed in full can we issue an appointment.

    This is an important element of the continence pathway as parental engagement and ability to apply interventions advised are crucial to the success of continence work.

    If parent/carers do not find the app suitable to their needs; please contact the service for a paper copy of the diaries.

    See below in the 'More Information' section for our Frequently Asked Questions.

    Completed diaries are reviewed by a Children & Young People’s Continence Nurse and discussed with you/r child / young person at the initial appointment. The nurse will make direct contact with the family prior to the initial appointment if they wish to signpost and advise on information within the diaries.

    If there are any safeguarding /child protection or other health concerns and the

    pre-assessment information is not returned within the allotted time frame, meaning the child/young person will be discharged from the service. These concerns will be discussed with the referrer.

  • Contact Details:

    Children’s Continence Team
    Unit 3, The Quadrant
    60 Marlborough Road
    Lancing Business Park
    Lancing
    BN15 8UW

    Tel: 01273 242145
    Service email: SC-TR.ChildrensContinence@nhs.net

  • Opening Hours:

    Monday to Friday, 9am – 5pm (excluding Bank Holidays).

    We are not an out of hours or emergency service.

  • How to find us:

    Nurse Specialist Clinic Venues

    West area clinics are held at:

    Shripney Unit
    Bognor War Memorial Hospital,
    Shripney Road,
    Bognor Regis,
    PO22 9PP

    Free parking available but restricted places.
    Telephone our team office for all enquiries: 01273 242145

    South area clinics are held at:

    The Children's Centre
    Worthing Hospital,
    Lyndhurst Road,
    Worthing
    BN11 2DH

    Limited parking available, fees charged.
    Telephone our team office for all enquiries: 01273 242145

    Lancing Health Centre
    Penstone Park
    Lancing
    BN15 9AG

    Free parking available, restricted spaces.
    Telephone our team office for all enquiries: 01273 242145

    North area clinics are held at:

    Hilltop Clinic Child Development Centre
    Horsham Hospital,
    Hurst Road,
    Horsham,
    RH12 2DR

    Limited parking available, fees charged.
    Telephone our team office for all enquiries: 01273 242145

    Crawley Hospital
    Jumbo Ward, Red Wing, 5th floor
    West Green Drive
    Crawley
    RH11 7DH

    Limited parking available, fees charged
    Telephone our team office for all enquiries: 01273 242145

    Mid Sussex area clinics are held at:

    Burgess Hill Clinic
    The Brow,
    Burgess Hill,
    RH15 9BW

    Free parking available, restricted spaces.
    Telephone our team office for all enquiries: 01273 242145

    Brighton & Hove area clinics are held at:

    The Children and Families Clinic
    D Block, Brighton General Hospital,
    Elm Grove,
    Brighton,
    BN2 3EW

    Limited parking available, fees charged.
    Telephone our team's office for all enquiries: 01273 242145

    Enuresis ( Night Wetting ) Clinic Venues

    West area clinics are held at:

    Chichester Child Development Centre                                         
    Westhampnett Centre,
    28-29 Westhampnett Road, 
    Chichester,
    PO19 7HH

    Free parking available but restricted places.
    Telephone our team office for all enquiries: 01273 242145

    Shripney Unit
    Bognor War Memorial Hospital,
    Shripney Road,
    Bognor Regis,
    PO22 9PP

    Free parking available but restricted places.
    Telephone our team office for all enquiries: 01273 242145

    South area clinics are held at:

    Lancing Health Centre
    Penstone Park
    Lancing
    BN15 9AG

    Free parking available, restricted spaces.
    Telephone our team office for all enquiries: 01273 242145

    North area clinics are held at:

    Hilltop Clinic Child Development Centre,
    Horsham Hospital,
    Hurst Road,
    Horsham,
    RH12 2DR

    Limited parking available, fees charged.
    Telephone our team office for all enquiries: 01273 242145

    Crawley Hospital
    Jumbo Ward, Red Wing, 5th floor
    West Green Drive
    Crawley
    RH11 7DH

    Limited parking available, fees charged.
    Telephone our team's office for all enquiries: 01273 242145

    Mid Sussex area clinics are held at:

    Burgess Hill Clinic,
    The Brow,
    Burgess Hill,
    RH15 9BW

    Free parking available, restricted spaces.
    Telephone our team office for all enquiries: 01273 242145

    Brighton & Hove area clinics are held at:

    Portslade Health Centre

    Church road

    Portslade

    Brighton

    BN41 1LX

    Free parking available, restricted spaces
    Telephone our team office for all enquiries: 01273 242145

  • More Information:

    Useful information and resources for the management of child and young peoples' continence:

    Frequently Asked Questions

    My child/young person (YP) has day/night time wetting and no constipation but we have been asked to fill in a poo diary

    We ask all children/YP referred into our service to complete a poo diary. The bladder and bowel are very close together in our body and the bowel can irritate the bladder causing urinary frequency and day and night-time wetting. The poo diary is an essential tool to help us to exclude this as a cause of bladder difficulties.

    My child has been referred for support with toilet training/product provision and I have been asked to complete a poo diary, but I don’t feel they are constipated

    • As a team we know that it can be hard to identify constipation in children/young people
    • If a child has additional needs and are not able to verbalise their thoughts or feelings clearly it is vital that we make sure that this is not an issue for your child / young person so that any future attempts at toilet training are as successful as they can be

    I cannot get my child/YP to allow me to see their poos in the toilet to complete the poo diary

    • It is an important part of the bowel assessment to get a clear picture of a child’s/YP poo so that we choose the best treatment option for them
    • Sometimes explaining why, we need the information can help them to understand and feel able to do this
    • Finding a way to make it discreet, some parents use a code so that the child/ Young person tells them in code what their poo looks like
    • Some older young people like to complete the chart themselves
    • Some young people may be happy to take a picture before they flush the toilet on their phone
    • Some parents gain information through seeing pants and the toilet area

    My child/YP will not wee into a jug to measure their bladder volumes

    • Sometimes it helps if the child or young people understands why we want this information. Measuring their urine, we can work out how much urine their bladder can hold. We know how much urine children/Young people at different ages can hold, the bladder diary also helps us to know if a child/young person is going too often (urinary frequency)
    • If a child/YP manages a few wees into the jug, then goes to the toilet and forgets don’t write off the whole day just write a note to say they went but forgot to measure that amount
    • If the child/YP can’t hold the jug, consider using a different container that sits in the toilet which can catch the wee and then be tipped into the jug to get the volume passed

     I am not able to remove my child/young person’s night-time product to complete the night wetting chart

    • We appreciate that wet sheets every night cause increased stress for parents and young people
    • The night wetting charts give us information about timing of bladder emptying over night and also the number of wetting accidents which can help to point to the right treatment choice for your child
    • In addition, sometimes when a night-time product is removed it can cause the child to achieve dryness without any intervention so is worth a try
    • Consider using bed production such as washable bed mats and duvet protectors so that it reduces the amount of disruption at home

    What can I do to help my child while we wait for an appointment?

    • If your child or young person is unwell with abdominal pain/ vomiting seek support from GP/emergency department or 111
    • There is further information at eric.co.uk andwww.bbuk.co.uk on all aspects of toileting, daytime/night-time wetting and constipation and soiling
    • Both the above websites also have helplines
    • There are some usefulYouTube clips about constipation and soiling which may be helpful
      • The poo in you
      • Childhood constipation understanding and treating this common problem
      • The poo nurses
  • Directorate:
    CHRW
  • Reference Directory ID:
    16286
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