Children's Continence Team (West Sussex)

The Children and Young People’s Continence team (CYPCT) West Sussex with Brighton and Hove is a community based Paediatric Continence Service; consisting of registered Children’s Nurses and Associate Practitioners with specialist knowledge of children’s continence, covering constipation, soiling, day wetting and night wetting (enuresis).

Toilet skills for children and young people with additional needs in West Sussex are supported and it is aimed this service will become available in Brighton and Hove in the future.

Healthy Bladder and Bowels is the first level of intervention for Children and Young People with continence issues.

Healthcare professionals usually within the Healthy Child Programme: Health Visitors and School Nurses can provide advice, information and support to help promote “Healthy bladders and bowels” reducing the risk of longer term problems such as ongoing constipation and wetting.

The Healthy Child Programme can offer the following:

o Toilet training advice e:g readiness for school, ages and stages
o Fluid and dietary advice
o Advice and strategies for day wetting, night wetting and constipation
o Signpost to GP for medications
o Signposting for additional early help support with issues which maybe contributing to ongoing continence issues.

The child/young person should be reviewed at least once, after 8-12 weeks, to ensure that treatment and lifestyle changes suggested by the Healthy Child Programme have had time to be embedded. If the continence issues remain with no improvement made; a referral can then be made to CYPCT.

Click here for more information about the Healthy Child Programme, West Sussex.

For more information about Health Visitors in Brighton & Hove click here.

CYPCT (Children’s and Young Persons Continence Team) is the second level of intervention for Children and Young People with ongoing continence issues (bladder and bowel dysfunction) and is a Specialist Nurse Led, Clinic based Service.

Children and Young People will have an in depth assessment including a detailed health and social history, bladder and bowel assessment and ultrasound bladder scan, if required, with a recommended treatment programme and careplan. This may include the recommendation of medication which could be prescribed by a Nurse Prescriber, Community Paediatrician or GP.

As this is a Nurse led service, when further specialist intervention is required, the service will refer to an appropriate hospital with children’s and young people’s doctors who specialise in bladder and bowel dysfunction.

Coverage

Billingshurst, Bognor Regis, Burgess Hill, Chichester, Crawley, East Grinstead, Emsworth, Hassocks, Haywards Heath, Horsham, Midhurst, Petworth, Selsey

How To Access

We accept referrals from health care professionals for children and young people who have a registered GP in West Sussex or Brighton & Hove.

The referral will need to detail what interventions and supports have been implemented at Tier 1 and the outcome of these.

Age criteria for children & young people:

o 3 years and over: Constipation/Soiling
o 4 years and over: Day Wetting
o 5 years and over: Night Wetting
o 3 years and over: Children or young People with an identified physical and /or learning disability for a continence assessment and to identify toileting skills enabling a toileting programme to be developed. (west Sussex Only at present time – June 2018)

Only after nurse specialist assessment and further review by our associate practitioners regarding toilet skills potential; if a clinical need is identified, a contribution towards product provision can be provided from the age of 4 years, with the expectation of a yearly review.

The CYPCT works in partnership with the child and family/carer. There is an expectation that the recommendations identified by the Nurse will be implemented within the home environment by the child and family/carers.

Once a referral has been received the information provided will be triaged by a CYP Continence Nurse. Pre-assessment charts specific to the referring reason are then sent to the home. The parents/carers are asked to complete these and return them to the CYPCT within a given timeframe.

These charts give essential assessment information regarding all aspects of the child/ young person’s bladder and bowel and also this engagement from families is an essential part of committing to the process of improving bladder and bowel function.

On receipt of the assessment charts the child/young person will be allocated a clinic appointment. Contact with the parents/carers prior to the appointment may be required if the Nurse feels there is a clinical need.

If the charts are not returned within 8 weeks the child/young person will be discharged from the service. If there are any safeguarding/child protection or other health concerns, this will be discussed with the referrer.

A child/young person will be discharged from the service:

o Once symptoms have resolved
o Should the family fail to engage
o If the child/young person requires onward referral

Contact Details

Children’s and Young Persons Continence Team (CYPCT)
Unit 1, The Quadrant
60 Marlborough Road
Lancing Business Park
LANCING
BN15 8UW
Tel: 01273 242145
Email: School Nurse for advice or contact our office for further information: 01273 242145

More information

More Information for the management of Children’s and Young People’s continence:

ERIC, The Children’s Bladder and Bowel Charity
www.eric.org.uk

The Poo Nurses
www.thepoonurses.uk

Bladder and Bowel UK, supporting people with bladder & bowel problems (formerly Promocon)
www.bladderandboweluk.co.uk

Constipation in children and young people: diagnosis and management, clinical guideline [CG99]
www.nice.org.uk/Guidance/CG99

Bedwetting in under 19s, clinical guideline [CG111]
www.nice.org.uk/Guidance/CG99