Paediatric Chronic Fatigue Syndrome (CFS/ME) Brighton & Hove
The Brighton and Hove Paediatric Chronic Fatigue Syndrome (ME/CFS) Service provides assessment, intervention programmes, advice and support to children and young people (up to the age of 18 years) with a diagnosis of Chronic Fatigue Syndrome (ME/CFS) (NICE 2021) living in Brighton and Hove.
Before coming to our service the young person will have met with a Paediatrician at the Royal Alexandra Children’s Hospital who will have diagnosed their symptoms as ME/CFS.
Our role is to assess the difficulties they are experiencing and to create an individually tailored intervention plan to help them to manage and to overcome these difficulties.
We work closely with medical, education and support services in the local area to provide comprehensive and integrated intervention programmes.
Appointments will usually be at Seaside View. However, if the young person is housebound we are able to carry out home visits.
We are a small service working 1-2 days per week and are comprised of a Clinical Psychologist and two Occupational Therapists.
For information please contact us via our email address sc-tr.paediatriccfs-meservice@nhs.net.
- Service Location:
- Brighton
- Hove
- How To Access:
Referrals to this service can only be accepted following a diagnosis of CFS/ME by a Paediatrician at the Royal Alexandra Children’s Hospital. Therefore GPs should refer patients to the RACH in the first instance. The young person remains under the care of the paediatrician to ensure medical oversight. For further advice/information please speak to our administrator or a clinician on: 07825 628004 or 01273 265780.
- Contact Details:
Telephone: 07825 628004 or 01273 265780
Email: sc-tr.paediatriccfs-meservice@nhs.net
Key Staff:
Dr Alice Alberici - Senior Clinical Psychologist
Julia Krikman – Senior Specialist Occupational Therapist
Jacqueline Murray - Specialist Occupational Therapist - Opening Hours:
- How to find us:
Seaside View Child Development Centre
Brighton General Hospital
Elm Grove
BN2 3EW - More Information:
Preparing for your appointment
Once we have accepted a referral we will offer an appointment to meet with our occupational therapist and psychologist. This is usually around 60 minutes with breaks as required. We may send out questionnaires ahead of this appointment to help us understand current needs. During this appointment an agreed plan of support is developed together.
What to expect while under our care
As an NHS provider we work within National Institute for Health and Care Excellence (NICE) guidelines. However we work in a flexible way that is patient-centred and collaborative with young people and families, taking into account their individual needs and what they have found themselves to be useful. We offer specialist assessments and both individual and group therapeutic work including activity management, workshops for both young people and caregivers and consultation and advice to other services and medical teams. We liaise closely with education providers to develop an educational programme that fits their needs. We also deliver education/training about CFS/ME to other professionals, schools and families.
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