We are a team of Multiple Sclerosis (MS) specialist nurses and practitioners providing information and support to people living with MS in Sussex.
Our service is for people living with MS as well as their families, children and relatives. We provide ongoing specialist nursing and see patients within their own homes, clinics or other venues.
We provide a variety of support to patients, families and professionals on different aspects of MS. This includes information and support with medication, advice on symptom and fatigue management, treatment options, lifestyle advice and useful information about living with MS. We also hold information days for newly diagnosed patients and refer patients to other services and agencies if needed.
During your appointment you will typically meet one-to-one with one of the MS specialist nurse or practitioners from your local team.
We offer appointments at your own home, at clinics and other venues. This will be communicated to you via your appointment letter.
After your appointment we will send a letter to your GP and consultant neurologist (if appropriate), highlighting any suggestions of treatment that may be beneficial to you with their agreement. We will make referrals to community teams if needed and arrange a follow up appointment with you as agreed in your initial appointment.
To access our local teams we ask that you are registered with a GP in the same locality and have a confirmed diagnosis of MS. We accept referrals from any professional as well as self-referrals as long as the above criteria are fulfilled.
Each of our local teams work varying patterns and hours and we are often out of the office in clinic or on home visits so may not be able to answer your call straight away. Please leave a message on our answerphone using the contact number for your local team below and we will get back to you as soon as possible. Please note this is not an emergency service.
Average waiting times for an initial appointment are up to four weeks from referral.
If you need advice about our services, facilities or staff, or would like to make a comment, please contact Patient Advice and Liaison Services (PALS).
You can contact PALS by the following:
Tell us what you think about our services, what we are good at, where we can improve, and what matters to you? All feedback will be shared anonymously wherever possible, but if you have any questions about this, please ask.
