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Current Studies at Chailey Clinical Services

Breathe-Easy: acceptability and feasibility of a new postural management night-time intervention to improve respiratory health of children with complex neurodisability

The Breathe-Easy research study will provide us with important information about the experiences of children with complex neurodisability and their families when they use a new postural management night-time intervention. The study is being carried out by a research team from Sussex Community NHS Foundation Trust and Brighton and Sussex University Hospitals Trust, with funding from the British Academy of Childhood Disability and the Chartered Society of Physiotherapy.

For more information visit our Breathe-Easy research study page.


MOTION (Mechanised Orthosis for children with neurological disorders)

The MOTION study addresses two challenges:
(i) to advance development validation and adoption of bionic rehabilitation technology for children with neurological disorders to improve quality of life.
(ii) to set up a transregional network to transfer this rehabilitation technology and related knowledge from research to practical application by linking with industry, healthcare professionals and users and to interact with policy makers for the creation of supportive frameworks. If upcoming medical trials prove that rehabilitation with exoskeleton suits leads to a lower total medical costs insurance companies will cover part of the bill and offer the possibility that hundreds of rehabilitation centres open or upgrade their current equipment to include exoskeleton devices which would result in the sale of thousands of units.

Chailey Clinical Services will provide clinical expertise to the UK partners with development and testing of the equipment.

For more information visit the MOTION project website

Partners

  • Sussex Community NHS Foundation Trust (UK)
  • CENTEXBEL
  • University of Greenwich
  • Kent Surrey Sussex Academic Health Science Network LTD (KSS AHSN)
  • Kinetic Analysis
  • KU Leuven
  • CEA – LETI
  • Thomas More University of Applied Sciences
  • University of Kent
  • Rehabilitation Center for children and youth Pulderbos
  • Canterbury Christ Church University
  • Ortho-Medico nv Benelux
  • Commissariat à l’Energie Atomique et aux énergies alternatives
  • Sint Maartenskliniek

The project benefits from further involvement of service users and a group of observers: Groupement of Hospitals of the Catholic Institute of Lille; Injeno; PACQUET INDUSTRIE; UP-tex Competitivness Cluster; Expertise and Ressources Center for Assistive Technologies of APF France handicap; University Hospital of Lille; Belgische Beroepsvereniging voor Orthopedische Technologieën (BBOT); CM Landsbond; PETIT BATEAU

This project has received a grant of 7, 476 119 from Interreg VA 2 Seas programme 2014-2020 co-funded by the European Regional Development Fund.

EDUCAT (Empowerment of Disabled people through the User
Coproduction of Assistive Technology)

EDUCAT is a European funded project to develop and deliver adaptive, open and modular technology to promote independence and improve quality of life for people with motor impairment and neurological disorders.

The project aims to promote a user-centred assistive technology design using co-design methods involving service users, engineers, clinicians, researchers, user-support networks and companies. A key element of the project is to incorporate monitoring of equipment usage patterns. It is anticipated that analysis of this data will provide diagnostic information on user condition and changes in that condition. This information will improve the prescription of assistive technology, inform the ongoing adaptation of that technology to meet user needs and increase the success rate for the long term provision of assistive technology. The outcome will be to improve the user quality of life. The development is supported by clinical trials throughout the project.

The expected benefits are cost and time savings for companies (for developing technologies) and hospitals (for care) as well as a higher efficiency of use of the technology.

The long term goal is to deliver affordable technology through cross-border collaboration and facilitate uptake on the market.

For more information visit the EDUCAT project website

Partners

The project benefits from further involvement of service users and a group of observers: CRN-T APF (FR), DSP Valley (BE), Dynamic Control (UK), ESIGELEG (FR), Eurasanté (FR), KABIF (UK) and SWBF (UK).

This project has received a grant of 1,798,722.60 from Interreg VA 2 Seas programme 2014-2020 co-funded by the European Regional Development Fund.

The Project Team

  • Dr Diane Sellers Chailey Clinical Services, Sussex, UK
  • Dr Kath Benfer Queensland University, Brisbane, Australia
  • Dr Kelly Weir Griffith University, Brisbane, Australia
  • Dr Lindsay Pennington Newcastle University, UK
  • Dr Christopher Morris University of Exeter, UK

If you are interested in participating in the study please contact Diane Sellers diane.sellers@nhs.net