Current Studies at Chailey Clinical Services

EDUCAT (Empowerment of Disabled people through the User Coproduction of Assistive Technology) 

EDUCAT is a European funded project to develop and deliver adaptive, open and modular technology to promote independence and improve quality of life for people with motor impairment and neurological disorders.

The project aims to promote a user-centred assistive technology design using co-design methods involving service users, engineers, clinicians, researchers, user-support networks and companies. A key element of the project is to incorporate monitoring of equipment usage patterns. It is anticipated that analysis of this data will provide diagnostic information on user condition and changes in that condition. This information will improve the prescription of assistive technology, inform the ongoing adaptation of that technology to meet user needs and increase the success rate for the long term provision of assistive technology. The outcome will be to improve the user quality of life. The development is supported by clinical trials throughout the project.

The expected benefits are cost and time savings for companies (for developing technologies) and hospitals (for care) as well as a higher efficiency of use of the technology.

The long term goal is to deliver affordable technology through cross-border collaboration and facilitate uptake on the market.

For more information visit the EDUCAT project website

The project benefits from further involvement of service users and a group of observers: CRN-T APF (FR), DSP Valley (BE), Dynamic Control (UK), ESIGELEG (FR), Eurasanté (FR), KABIF (UK) and SWBF (UK).

This project has received a grant of 1,798,722.60 from Interreg VA 2 Seas programme 2014-2020 co-funded by the European Regional Development Fund.

Mini-EDACS - Eating and Drinking Ability Classification System for young children with cerebral palsy.

Previously we developed the Eating and Drinking Ability Classification System (EDACS) to describe the eating and drinking abilities of people with cerebral palsy from age 3 years. See the dedicated webpage for details of its success including different language variations: . We are building on this work to develop Mini-EDACS – an extension of the EDACS suitable for use with very young children with cerebral palsy, aged 18 months to 36 months.

We will:

  • Refine content of Mini-EDACS with reference to videos and assessment data of children with cerebral palsy aged 18-36 months recorded systematically over time

  • Revise and confirm content of Mini-EDACS through an international Delphi Survey

  • Test reliability of Mini-EDACS when used by therapists and parents

Mini-EDACS will provide a universal way of classifying and communicating eating and drinking abilities of young children with cerebral palsy. It will make it possible to answer questions such as:

  • What is the range of eating and drinking abilities in young children with cerebral palsy?
  • Do children’s eating and drinking abilities change over time when measured using EDACS?
  • What is the prevalence of eating and drinking difficulties in children with cerebral palsy?

We received a grant of from Nutricia Advanced Medical Nutrition to complete the study.

The study has received ethics approval from the Health Research Authority reference:  17/LO/1557 Project ID: 229819.  

  • Dr Diane Sellers Chailey Clinical Services, Sussex, UK
  • Dr Kath Benfer Queensland University, Brisbane, Australia
  • Dr Kelly Weir Griffith University, Brisbane, Australia
  • Dr Lindsay Pennington Newcastle University, UK
  • Dr Christopher Morris University of Exeter, UK

If you are interested in participating in the study please contact Diane Sellers