Completed Studies
Adolescents’ experiences of communication following acquired brain injury
After a brain injury some children and young people have changes to their communication. Communication is a word used to describe speaking, listening, understanding and taking turns. I wanted to find out what it is like for adolescents to communicate with other people after a brain injury. More details
Sparks Study
The introduction of Petra running bikes to encourage and facilitate weight bearing exercise for children with cerebral palsy who are unable to walk independently. More details
Development of a Functional Classification System of Eating and Drinking for Children and Young People with Cerebral Palsy to Improve Quality of Care
The aim of the research is to develop a functional classification system of eating and drinking for children and young people with cerebral palsy as currently there is no agreement about how to rate the severity of a child’s eating and drinking difficulty, i.e. the child’s ability to move muscles to bite, chew and swallow. The words “severe”, “moderate”, and “mild” are all used without an agreed definition.
The research has been given a favourable ethical opinion from the Brighton East NHS Research Ethics Committee.
More information about the Eating and Drinking Ability Classification System Project
Identification of sleep problems by questionnaire in children with severe cerebral palsy.
Evaluating a questionaire to investigate sleep problems and their possible causes in children with cerebral palsy. More details
Find out more about the Chailey Sleep Questionnaire publication
Effectiveness and feasibility of intensive short-term graded exercise programmes, using either treadmill or static exercise bicycle, for non-ambulant children and young people with cerebral palsy.
The aim of the research is to determine the effectiveness and feasibility of intensive short-term graded exercise programmes, using either treadmill or static exercise bicycle, for children and young people with cerebral palsy, in improving functional motor ability and quality of life. More details
To investigate the effects of sleep systems on sleep quality and pain in children and young people with cerebral palsy.
The aim of the research is to determine the effects of sleep systems on the quality of sleep and levels of pain for children with cerebral palsy. More details
An epidemiological study of Lesch Nyhan disease
Collecting data from current cases of Lesch Nyhan disease in the UK to provide a better understanding of this rare metabolic condition. More details
Gastrostomy – The young people’s perspective: How does a gastrostomy impact on the life of a young person with a physical disability?
The study will aim to explore the young person’s experience of having a gastrostomy tube. More details
The health information needs of children and young people with cerebral palsy: an exploration of children and young people’s perspectives
The aim of the research is to identify what children with cerebral palsy themselves want to know about their health and development. More details
Evaluation of the Implementation of the NSF for Children and Young People
The aim of this evaluation is to examine the extent that Chailey Heritage Clinical Services (CHCS) achieves high-quality accessible services that are focused on the needs of the Child or Young Person and are family centred. More details
- See a poster showing some examples of what the Children and Young People said about the Children Head Injury Service as part of the evaluation.
- See a poster presenting an overview of the evaluation and its findings based on consultation with children, young people & their families and those that provide the service.
- Read: Finches (Overnight short break) Service Evaluation 2008.
Effectiveness of postural management equipment in children with bilateral cerebral palsy
Investigating if early introduction of postural management equipment can reduce levels of hip dislocation at 5 years. More details
The Effect of Tilt-in-Space Wheelchairs on Children’s Posture and Function
Aims: To determine the effects of tilt-in-space on postural ability, comfort and functional ability in children with bilateral cerebral palsy by:
- Questionnaire to gather views of users of tilt in space wheelchairs
- Measuring changes in posture & function at different angles of tilt
User satisfaction with physiotherapy service in a special needs school
The aim of this study is to evaluate the level of user satisfaction and attitudes towards a physiotherapy service in a special needs school. The object of the study is to identify any areas of the service pupils are happy with or areas which need improvement. More details
Developing powered mobility with children who have multiple and complex disabilities
Identifying the learning stages and strategies for disabled children who want to develop powered mobility skills. More details
Outcome scales following head injury
Evaluating assessment tools which are currently available for use with children and young people with an acquired brain injury. More details
Improving methods of assessment and dietary management of children with neurodisabilities: A National Survey of current dietetic practice
A survey of how dietitians estimate nutritional requirements. More details
Bone quality assessment measured by quantitative ultrsonometry in children with and adolescents with cerebral palsy
Measuring bone quality in children and adolescents with cerebral palsy using ultrsonometry to determine risk profiles for fracture. More details
